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The guide to the diagnosis and treatment of lipodystrophies and the nutritional guide will be available in English and Portuguese in 2020 -
The International Association of Families and People Affected by Lipodystrophies AELIP, is already work ...
News
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AELIP will launch in May the first international quality of life study in patients with lipodystrophy -
The International Association of Relatives and People Affected by Lipodystrophy (AELIP), in its aim to improve the quality of life of peopl ...
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AELIP will participate in the annual meeting of the Global Network for Rare Diseases (GND) on May 18th and 19th -
The International Association of Families and People Affected by Lipodystrophies (AELIP) will participate as an associate member ...
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AELIP will participate in the 10th European Conference on Rare Diseases and Orphan Drugs and will present a poster related to the importance of diagnosis in lipodystrophies -
The International Association of Families and People Affected by Lip ...
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A recent study published in OJRD concludes that leptin treatment leads to improved personal perception of physical appearance and social relationships -
A recent study published in OJRD by Professor Corinne Vigouroux's group at Sorbonne Univer ...
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20 countries celebrate WORLD LYPODISTROPHY DAY 2020 -
WORLD LYPODISTROPHY DAY this 2020 and due to the exceptional circumstances of the pandemic caused by the VID-19 only contemplated actions of sensitization, visibility and awaren ...
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LipoDDx the first free APP for Lipodystrophies now has its own academic article in the Orphanet Journal of Rare Diseases -
"LIPO-DDX" the first free app to identify the different subtypes of rare lipodystrophies is now available in the Orphane ...
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A descriptive and observational study is published which determines the high prevalence of generalized congenital lipodystrophy in the region of Piura (Peru) -
Widespread congenital lipodystrophy (CGL) is an autosomal recessive rare disease, w ...
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Call to action by European lipodystrophy experts on the occasion of "World Lipodystrophy Day -
World Lipodystrophy Day: call to action from European experts on this ultra-rare disease Amryt Pharma joins its voice to that of doctors and pa ...
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AELIP commemorates the WORLD LIPODYSTROPHY DAY by claiming the Decalogue of priority needs for people and families living with Infrequent Lipodystrophy -
World Lipodystrophy Day 31 March 2020 People with Lipodystrophies, family members an ...