Representatives of AELIP make a successful trip to Peru to take part in the “Guide to Diagnosing Lipodystrophy” workshop, which took place in the National Institute for Child Health in the “Ernesto Velit Granda" Endocrinology and Metabolism Service.
Vice-President and Director of the International Association of Families and People Affected by Lipodystrophy (AELIP), Juan Carrión, and member of the Committee of Experts, Dr David Araújo, were in Peru from 11th to 12th April. There, they attended a programme of meetings where they spoke with healthcare professionals from the University, as well as people affected by lipodystrophies and their families.
Among other things, the workshop included a keynote speech by Dr David Araújo, in which he spoke about Berardinelli-Seip syndrome, as well as presentations by VP Carrión on the Guide to Diagnosing Lipodystrophy, and on the international AELIP project.
Furthermore, the sessions included a working meeting with families from Piura who are affected by lipodystrophies.
During their stay in Peru, the members of AELIP also had the chance to visit the National Institute for Child Health, where they held meetings with the genetics department and hospital management. Their objective was to set up a study on carriers of Berardinelli-Seip syndrome in Piura to help prevent this rare disease.
Likewise, they also had a working meeting with the Rector and Dean for the Faculty of Medicine at the University of San Marcos de Lima to establish a framework partnership agreement with AELIP.
The training activities carried out in Lima were part of the international cooperation project “Public Health Intervention for Professionals, Families and Persons with Lipodystrophy in Peru”, which in its first phase has already involved the completion of a study on the health and social care needs of people and families affected by lipodystrophies in the Piura region.
This international project has the collaboration and support of the FCB World Penyes Federation, European Consortium of Lipodystrophies, the Spanish Federation of Rare Diseases (FEDER), the Iberoamerican Alliance for Rare Diseases (ALIBER), and the Spanish Society of Lipodystrophies (SEL).
