The International Association of Families and People Affected by Lipodystrophies (AELIP) will participate online and as a full member in the 10th European Conference on Rare Diseases and Orphan Drugs on May 14th and 15th.
AELIP, which has the right to vote at this meeting, will also participate with a poster presentation on the importance of current training and diagnostic tools in the field of lipodystrophies.
The European Conference on Rare Diseases and Orphan Drugs (ECRD) 2020 is being held exclusively online on 14-15 May.
Recognised as the largest patient-driven event on rare diseases, ECRD will be held via an interactive online platform and is open to everyone, anywhere in the world.
ECRD 2020 is a unique opportunity to network and exchange valuable knowledge with all stakeholders of the rare disease community from more than 50 countries around the world: patient representatives, policy makers, researchers, clinicians, industry representatives, payers and regulators. The ECRD brings together more than 800 participants from 50 countries.
As the EU shapes its future policy and spending frameworks for the next decade, ECRD 2020 serves as an opportunity to create policy options today that can lead to a better patient journey in the years to come.
People living with a rare disease have the right to reach their highest potential for well-being. Join ECRD 2020 online and participate in debates to inform and build the future ecosystem for rare disease policies and services.
Sessions organised by recognised experts are based on six sub-themes:
The future of diagnosis: new hopes, promises and challenges
Our values, our rights, our future: changing paradigms towards inclusion
Share, Care, Cure: Transforming care for rare diseases by 2030
When therapies meet needs: enabling a patient-centred approach to therapeutic development
Achieving Triple A by 2030: Accessible, available and affordable treatments for people living with a rare disease, and
The digital health revolution: propaganda vs. reality
if you want to know the complete program you can do it in the following link: https://www.rare-diseases.eu/programme/