This training action, promoted by the International Association of Relatives and Affected of Lipodystrophies (AELIP) has given an appointment to professionals in Lipodystrophies and sanitary students of Peru through a videoconference programmed at 16 hours, Peruvian time and 23 hours, Spanish time.
The event was held on Tuesday 25 June and brought together a total of 66 participants, including the six speakers.
The vice-president and volunteer director of AELIP, Juan Carrión Tudela, was in charge of welcoming all the members and then giving the turn to Dr. David Araujo-Vilar, professor of Medical Endocrinology and Genetics at the University of Santiago de Compostela, Spain and president of the Governing Board of the European Consortium of Lipodystrophies-ECLIP. In the thirty minutes stipulated for each speaker, Dr. David Arujo-Vilar presented "Lipo-DDx", an app developed to help doctors who are not experts in this field to diagnose rare lipodystrophies. The application is based on a personal algorithm developed by Dr. Araujo-Vilar himself
Dr. Carlos del Aguila Villar treated the situation of the pediatric patient with LCG at the Instituto Nacional de Salud del Niño - Breña Lima, in Peru, of which he is a member. He also collaborates with the Endocrinology and Metabolism Service and since his recent incorporation, he is part of the AELIP's expert committee.
Subsequently, AELIP made known the social and health services and resources it provides to improve the quality of life of people and families living with a lipodystrophy. José Jerez Ruiz, Social Worker of AELIP and responsible for the Information and Orientation Service in Lipodystrophy -SIOLIP, Juan Carrión Tudela, Vice-president and Director of AELIP and President of ALIBER, together with the delegate of AELIP in Peru, Mariela López Correa were in charge of presenting this more social vision of the disease to all the participants.
The last lecture was given by Dr. Nelson D. Purizaca Rosillo, Genetic Doctor from the Institute of Genomic Research, Igenomica Lima, Peru) who addressed the genetic and epidemiological aspects of GLC in his home country.
The webinar closed with a round table of questions after two and a quarter hours of presentations.