WORLD DAY OF LIPODYSTROPHIES – 31ST MARCH 2021
The World Lipodystrophy Day arises as a platform to develop reference activities, as well as to undertake, unite and promote political and social actions in different places in Spain and Europe, in collaboration with the alliances of Latin American countries (ALIBER) and the European organization of rare diseases (EURORDIS). The first world day of lipodystrophies was celebrated in 2013
AELIP celebrates at international level in March, the most important awareness campaign of the year: the World Lipodystrophy Day March 31
This campaign is promoted by the European Organisation for Rare Diseases (EURORDIS) and the Spanish Federation for Rare Diseases (FEDER) and is developed in coordination with the Ibero-American Alliance for Rare Diseases (ALIBER) Rare diseases international (RDI), the Spanish Society for Lipodystrophies (SEL) and the European Consortium for Lipodystrophies (ECLIP)
Goals and Objectives
Among the objectives of AELIP for this campaign:
To raise awareness of the public health problems caused by lipodystrophies.
To implement actions that will have an impact on avoiding the social isolation that in many cases those affected by and their families with lipodystrophies suffer.
To carry out activities to disseminate the characteristics and particularities of lipodystrophies.
To carry out coordination actions with all the parts involved: patients, public administration, health professionals, etc., in order to find resources and improve the attention of those affected.
Why a gesture?
Because it is a distinctive element that favors the adhesion of all people to the Campaign. It generates a feeling of union and cohesion around people with lipodystrophies and exemplifies the conceptual idea of the Campaign in an easy and simple way. The origin of the gesture comes from the support to the research on Lipodystrophies
What gesture are we going to push for?
Gesture: Campaign "L" form an L with the thumb and index finger of the left hand
What do we want to inspire? Why this gesture?
- This gesture symbolizes the initial "L" of the word Lipodystrophy
- It transmits a message of unity and accompaniment.
- It conveys positivism, a sense of victory.
AWARENESS CAMPAIGN - WORLD LIPODYSTROPHY DAY - MARCH 31
1. Upload your photo with the L gesture (with the thumb and index finger of the left hand) to TWITER, FACEBOOK or INSTAGRAM with the following hashtag
HOW CAN I SUPPORT WORLD LIPODYSTROPHY DAY?
Dissemination of our website and social networks among your contacts
Participate in the AELIP CAMPAIGN - Send us to FACEBOOK, INSTAGRAM OR TWITER the hashtag #UNITED4LIPODYSTROPHY
with a photo with a gesture of L for lipodystrophies with the left hand.
Get a support video involving a famous personality.
Carry out awareness activities.
Diffusion through different media.
Send mass emails to your friends and acquaintances.
Download, draw and color your drawing with the WORLD LIPODISTROPHY DAY template and upload it to your social networks with the above hashtag http://www.superweb.es/aelip.co.uk/descargas/4214s-investigacion-1.pdf
Share daily in social networks the decalogue of needs of people and families living with a lipodystrophy in the world http://www.superweb.es/aelip.co.uk/descargas/4214s-manifiestos---fotos-manos-frances-1.pdf
Consult the manifesto for the World Lipodystrophy Day
English, French, Portuguese and Spanish version