The IX International Symposium on Lipodystrophies organised by the International Association of Relatives and Affected of Lipodystrophies, AELIP, ended successfully.
The Association of Relatives and People Affected by Lipodystrophies (AELIP) held the ninth edition of the 'INTERNATIONAL SYMPOSIUM ON LIPODYSTROPHIES' on 20, 21 and 22 October, with the collaboration of, among others, the Spanish Federation of Rare Diseases (FEDER), the European Alliance of Rare Diseases Patients' Associations (EURORDIS) and the Ibero-American Alliance for Rare Diseases (ALIBER),
The Symposium featured scientific presentations of the highest level by health research professionals who presented advances and updates in Lipodystrophy research".
A total of 3 round tables of scientific papers were developed during the two days of the event. Natural history and updates of lipodystrophies, pathogenic mechanisms of lipodystrophies and diagnostic challenges and therapeutic approaches in lipodystrophies.
In addition, the symposium featured a panel entitled European Lipodystrophy Registry and updates by the European Lipodystrophy Consortium and was led by Julia v. Schnurbein Senior Consultant (Funktionsoberärztin) in the Division of Paediatric Endocrinology and Diabetes, Department of Paediatric Endocrinology and Diabetes, Department of Endocrinology and Diabetes.
Endocrinology and Diabetes, Department of Paediatrics and Adolescent Medicine, University of Ulm, Germany.
of Ulm, Germany.
The meeting brought together students, health professionals, family members and people affected by Lipodystrophies at an international level with more than 450 registrations representing more than 20 countries including Peru, Argentina, Ecuador, Brazil, Colombia and Chile from Latin America and Spain, France, Portugal, Germany, United Kingdom, Italy, Russia and Greece from Europe.
The Symposium, which has had simultaneous interpretation of all the presentations in Spanish, English and Portuguese, was closed on 22 October at 18h by Juan José Cánovas, Mayor of Totana, who stressed the importance of continuing to develop these training meetings to increase knowledge and raise awareness of these rare pathologies both to society and health professionals, families and people affected, calling all attendees to a tenth meeting in 2022.
The president of AELIP, Naca Eulalia Pérez de Tudela Cánovas, publicly thanked researchers, reference professionals, students, families, affected people, alliances and sponsors for the possibility of coinciding in the same meeting and supporting Infrequent Lipodystrophies from different perspectives.
