The training material on Lipodystrophies implemented by the International Association of Lipodystrophies Affected and Relatives AELIP, as well as the quality of life study that this entity is carrying out, are now available on the website of the Portuguese Society of Endocrinology, Diabetes and Metabolism (SPEDM).
This space has been created with the aim of covering the information needs and helping those affected and their families, as well as medical professionals when diagnosing their patients.
The section "Training Material on Lipodystrophies" was launched in July 2020 and includes the following materials in Spanish, English and Portuguese:
Practical Guide for the Diagnosis and Treatment of Infrequent Lipodystrophies aimed at medical professionals, where all the information available so far about the more than 40 subtypes of Lipodystrophies is collected in order to offer a more reliable diagnosis and possible treatments.
Nutritional Guide for Lipodystrophies, aimed at patients and their families to guide them in following an appropriate diet, adapted to the comorbidities associated with each Lipodystrophy. Many of these subtypes of Lipodystrophies do not have a definitive treatment and in most cases it is precisely a good diet that helps to improve their quality of life.
Lipo-DDX. In this case it is not a manual but an App that helps to better characterise the different subtypes of Lipodystrophy.
All this information can be consulted by accessing http://www.aelip.es/material-formativo-lipodistrofias.asp.
The Portuguese Society of Endocrinology, Diabetes and Metabolism (SPEDM) includes physicians, researchers and other health professionals dedicated to the study and treatment of endocrine disorders in Portugal. Since its foundation in 1949, the successive boards of SPEDM have made it their mission to promote knowledge and research in Endocrinology, in order to ensure the best treatment for people with endocrine disorders.
The training material on Lipodystrophies as well as the quality of life study is available on the Society's website in the Lipodystrophies study groups section https://www.spedm.pt/grupo-de-estudo-das-lipodistrofias/
The president of AELIP, Naca Perez de Tudela Cánovas, would like to thank the Portuguese Society of Endocrinology, Diabetes and Metabolism (SPEDM) chaired by JOÃO JÁCOME DE CASTRO for making this important material visible to help in the approach to the diagnosis of Lipodystrophies.