This training action, promoted by the International Association of Lipodystrophy Patients and Relatives (AELIP) has brought together professionals in Lipodystrophy and health students from Argentina through a videoconference scheduled at 16:00 hours, Argentinean time.
Thanks to the outstanding cooperation between the Asociación de Pacientes con Lipodistrofias en Argentina (APLA) and AELIP Internacional, this webinar brought together a total of 75 participants from Argentina and Spain, including the eight speakers. It is an initiative that aims to highlight and share experiences, working models, resources, etc.
The president of AELIP, Naca Pérez de Tudela Cánovas, together with the endocrinologist and president of APLA, Carla Musso, were in charge of presenting the webinar and welcoming all the participants, followed by Dr. David Araujo-Vilar, professor of Endocrinology and Medical Genetics at the University of Santiago de Compostela, and president of the Governing Board of the European Consortium of Lipodystrophies-ECLIP. In the thirty minutes stipulated for each speaker, Dr. David Arujo-Vilar presented "Lipo-DDDx, an app developed to help doctors who are not experts in this field to diagnose rare lipodystrophies. The app is based on a personal algorithm developed by Dr. Araujo-Vilar himself.
The different speakers addressed lipodystrophies from four perspectives: metabolic, social, nutritional and therapeutic. Dr. María Eugenia Andrés, paediatrician and specialist in children's nutrition, was in charge of addressing the metabolic characteristics of lipodystrophies.
After a short break of half an hour, AELIP presented the social and health services and resources it provides to improve the quality of life of people and families living with lipodystrophy. José Jerez Ruiz, Social Worker of AELIP and responsible for the Information and Guidance Service on Lipodystrophies -SIOLIP, Juan Carrión Tudela, vice-president and director of AELIP and president of ALIBER, together with the delegate of AELIP in Argentina, Silvina Andrea Claverie, were in charge of presenting this more social vision of the disease to all the participants.
One of the important aspects to improve the quality of life of people suffering from Lipodystrophies is to have a good diet. It is in this field where we have counted on the participation of Dr. Laura Major, a paediatrician specialised in nutrition.
The last talk was given by Dr. Carla Musso, who presented the new association APLA, of which she is president, and discussed the therapeutic options currently available for this type of disease.
