The International Association of Lipodystrophy Families and Patients (AELIP) is participating on 9 and 10 February in Costa Rica in the High Level Forum - X Ibero-American Meeting on Rare Diseases organised by the Ibero-American Alliance for Rare Diseases (ALIBER).
This meeting will take place in the city of San José, Costa Rica, as a preamble to the Summit of Heads of State to be held in the Dominican Republic in March 2023.
In this space, ALIBER aims to provide a space for exchange between decision-makers, which in turn will allow them to work on the prioritisation of care for people with Rare, Orphan or Uncommon Diseases and their families in the Ibero-American region.
The event is supported by the Legislative Assembly of the Republic of Costa Rica, which will host the Forum during the two days of the event, in the Hall of Heads of State, Former Presidents and Former Presidents of the Republic, in its Main Building, level 1, located in Av. Central, El Carmen, San José, at the following times:
Thursday, February 9, 2023 from 9:00 a.m. to 6:00 p.m. and Friday, February 10, 2023 from 9:00 a.m. to 12:00 m.
The President of AELIP, Naca Eulalia Perez de Tudela Cánovas, has travelled to Costa Rica on behalf of AELIP and has emphasised that: "This high-level forum has an important scope in the region as it involves leaders of the associative movement, research professionals, students, representatives of the different administrations and the pharmaceutical industry".
Perez de Tudela also added "I am proud to be here representing the International Association of Relatives and Affected of LIPODISTROPHIES AELIP in the X IBERO-AMERICAN MEETING OF RARE, RARE OR RARE OR FEW FREQUENT DISEASES.
AELIP has also been represented by its volunteer Director Juan Carrión Tudela who is also the President of the Alliance.