On May 11th, the International Association of Relatives and Affected of Lipodystrophies (AELIP) participated in the International Congress of Laminopathies.
The event took place from the 9th to the 12th of this month in the city of Madrid. The congress was attended by researchers, doctors and patients. The Association had the opportunity to share not only life experiences but also had the opportunity to expose how they develop the working model that benefits families and patients affected by Lipodystrophy.
Naca Pérez de Tudela (president), José Jerez Ruiz (social worker) and Juan Carrión Tudela (volunteer director) were in charge of representing the International Association of Families and People Affected by Lipodystrophy.
The congress was also attended by David Araujo Vilar (member of the AELIP board of directors), Araujo was also part of the organising committee.
Through this forum, AELIP made known the services offered and the dynamics that they carry out to meet the needs of those who make up the Association. These include information and guidance on RE and psychological support.
During the meeting, emphasis was placed on the objective of promoting research, supporting and raising awareness of Lipodystrophies. The occasion also allowed a rapprochement with other patient associations at an international level and with which it is hoped to create alliances in the future.